Thread: going on exjade
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Old Sun May 13, 2012, 07:11 AM
marmab marmab is offline
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Join Date: Jul 2011
Location: Massachusetts
Posts: 67
Thanks for info

Thanks, Marlene, for the information. My platelets go down into the teens and single digits routinely. It's good to know that your husband tolerated Exjade, and his low platelet count didn't seem to be a problem. I don't have a central line so that may be why the doctor didn't suggest desferal, but it's good to have options.

Marmab
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Marmab, F65, SAA/hypo MDS dx 7/2011. Tried ATG/CsA, IvIG, Rituxan, prednisone, Promacta -- none of these helped. Transfusion dependent until MUD BMT 7/17/14. Prep. regimen of Campath, Fludarabine & Cytoxan. Doing great. 100% engraftment. No GVHD.
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