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Hi Beth, when I first became ill (before diagnosis) I lost over 90lb in 8 months. I was hospitalized to be supervised for ? Anorexia Nervosa and food supplementation.
I ate everything set in front of me along with the liquid supplements and still managed to lose more weight while I was in hospital. I was told I was cachetic (? spelling). I had every test known to man and was found to have Barretts as well as esophageal candida along with the bone marrow failure.
After I started treatment for the candida I started gaining weight again and it hasn't been a problem since then.
I don't think it's unusual to lose some weight but I'm not sure that Earls weight loss is not excessive. Is his doctor concerned? Mine certainly were.
Regards
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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