Thread: going on exjade
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  #18  
Old Tue Jun 26, 2012, 10:27 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
John started at 250 for a month, went to 500 and then 750. 1000mg was too much for him. 1000mg effected the kidneys so he stop till the creatinine dropped and restarted at 750. He was able to handle 750 for quite a long time.

At some point, 750 became too much also and he dropped to 500. Finally he stopped all together when his HGB held at 10+. He then did phlebotomies.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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