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exjade
I was on Exjade for 6 month exactly! I decided to take it because once my Ferritin hit 1000, I wanted to get it back to normal range. It worked very nicely for me, but did make me feel nausaus from months 2-6. I had decided to stop regardless, because I work FT, and it made it difficult with the nausea, but I stopped when I was down to about 350 and then my counts went back to normal within 2 months time anyway. Ya gotta do what ya gotta do! I never actually had to throw up, it was just a mild - mid nausea feeling. I felt the benefits outweighted the risks. I will say, however, that NONE of my docs told me the side effects. But my local dr was very good about checking all of my counts and organ function so all was good!
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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