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Old Thu Mar 17, 2011, 03:30 AM
Rosie Rosie is offline
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Join Date: Feb 2011
Location: California
Posts: 4
What lead the doc to think I had MDS was a drop in my RBCs. I went into the ER one night for stomach pain and when they drew my blood, my HGB was at 8 and my HCT was at 23.4

Then, 12 days later, I went back to the ER with palpitations and chest pain. When they drew my blood, my HGB was at 6.6 and my HCT was 19.6. The fact that it had dropped so much so fast led them to investigate.

The hematopathology report just came back showing some scarring on the marrow, so now they're suspecting I have myelofibrosis, but they're not sure. They're also trying to rule out an autoimmune disorder.

The hematopathology report came back saying my RBC precursors were at 50% and my cellularity was closer to 100% which is very odd.

It's very frustrating to not have answers or know what's really causing my problems, but I'm trying to keep a positive outlook and remain hopeful.
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