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Old Thu Aug 22, 2013, 04:33 PM
Robi1Knobi Robi1Knobi is offline
Join Date: Mar 2007
Location: Austin, Texas USA
Posts: 98
Finished Danazol study!!

Last week, I went to NIH and had my annual BMB, 23 tubes of blood taken, 2 echo's, 3 ultrasounds, a CT scan, MRI, PFT's and a 6 minute walk AND came off Danazol Tuesday ). I hope good things continue, platelets are still low at 50, but other than that, I'm feeling good! I did have a killer migraine Thursday , guess my body has to get used to hormone imbalances. Anyhoo, hope ya'll are doing good as well )
Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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