How do I find out clinical trials for persistent MDS post MUD?
My husband underwent MUD on 2/21 for high risk MDS and BMbx shows persistent disease with 10 % blasts and chimerism 85% donor; He has acute GVHD of the skin involving 80% of his body; For now docs here recommend photophoresis and want to taper him off the steroids as quickly as able to try to maximize possible GVL effect;
How can I find out about other treatment options/clinical trials? Does anyone know of any for persistent disease post MUD or recommend a specific expert clinician for consultation?
Wife of diver down - still fighting!!