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Old Fri Jan 12, 2007, 03:02 PM
smarchesin smarchesin is offline
Join Date: Aug 2003
Location: Edmonton, Alberta, Canada
Posts: 6
Childhood Marrow Failure & Myelodysplasia Meeting, Toronto, Ontario - Feb 17/07

Marrow Failure & Myelodysplasia Meeting

Saturday, February 17, 2007
from 9 a.m. to 4:30 p.m.

Main Auditorium, Elm Wing, 1st floor
The Hospital for Sick Children, Toronto, Ontario

We are pleased to invite you to this interactive patient, families and health care meeting. The meeting will focus on understanding the diseases, treatment, transfer of patients to adult centers and future directions. The clinical and research activities of the Marrow Failure and Myelodysplasia Program at SickKids will also be discussed.

Examples of marrow failure disorders and MDS:
Acquired (e.g. Aplastic anemia), Genetic (e.g. Fanconi anemia, Shwachman-Diamond syndrome, Congenital amegakaryocytic thrombocytopenia Dyskeratosis congenita Diamond Blackfan anemia, Kostmann neutropenia, Cyclic Neutropenia, Barth syndrome, Glycogen storage disease Ib, Myelokathexis, Thrombocytopenia with absent radii, Familial thrombocytopenia), myelodysplastic syndromes

For details and to RSVP please contact:
Dr. Yigal Dror, c/o Ms. Carol Ellis, Marrow Failure and Myelodysplasia Program, Hospital for Sick Children, Toronto at 416-813-8795 or email:
Silvia Marchesin
Edmonton, AB, Canada
SAA 1992 (CyA, ATG + CyA)
PNH 1995
SAA/PNH 2010 (CyA, ATG + CyA)
RBC transfusions every two to four weeks, low wbc, low platelets
Soliris, Coumadin, Exjade, B6, Folic Acid, B12
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