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Old Mon Sep 4, 2017, 11:47 AM
Hopeful Hopeful is offline
Join Date: Jan 2009
Location: California, USA
Posts: 718
Hi Rarity,

I am sorry to hear about your husband's diagnosis. I would recommend that you get a second opinion - either at that center or somewhere else. You want to feel very comfortable with your husband's doctors, as this is a long process and you will have lots of question. Where do you live?
52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.
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