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Old Fri Sep 8, 2017, 06:19 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 829
Hi Rarity - I've been on watch and wait for five and a half years now. However my main problem is low white cells (they're usually around 1.5). I've never needed blood transfusions. I have IV Intragam every few weeks, and while it doesn't raise my white cell count, it helps my immune system. My haematologist thinks I could live for years more as long as I can avoid serious infections.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. On watch and wait since Feb 2012. IVIg 5-weekly. BMB Feb 2014 - no blast transformation. 2018 still stable.
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