I hope your mom is doing okay and that they are trying to address her issues.
Don't be afraid to question your doctors or ask for a second opinion/evaluation, even at the same hospital if necessary. Trust your instincts if you think something isn't right.
You are in my thoughts.
52 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. Tried slow cyclosporine taper over 4+ years. Platelets fell, so back on cyclosporine. Trisomy 6 clone in 5% of cells.