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Old Fri Apr 6, 2018, 09:57 PM
Heather8773 Heather8773 is offline
Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Hi Barb

Thank you 😊

I can understand from only my perspective your excitement. Living by numbers so to speak. I hope your BMB goes smoothly and numbers are what y’all hope to see.
I also hope you have the “favorite “ doing the BMB my husband finally found one he is the most comfortable w.
If I can be of any help please don’t hesitate to ask. I’m happy to share anything about his experience

God bless
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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