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Old Thu Oct 10, 2013, 10:58 AM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Ellen,

I have MDS, not AA, but was on high dose prednisone for several months when the doc thought that I had ITP. Within 6 months, i developed avascular necrosis in both hips, my feet, and felt pain in my knees as well. Most of this has subsided now, and the issue only flares up occasionally.

The sports medicine doctor that I saw said it could be the steroids, or it could be that the blood is thinner and the walls of the veins collapse causing the pain.

Have you been on any steroids?
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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