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Thanks all for your informative inputs. It helped.
We went for a second opinion with 2 other doctors and they told us to continue on Decitabine until she stops responding.
After the 6th cycle of Decitabine her platelets dropped to 9000 and she was given platelet infusion. Just after a week of the infusion the platelets again dropped to 11000 and had to infuse again. This is the first time in 3 months that the platelets dropped so low in a week's time.
Plus, she is having severe constipation. She is on laxatives but that does not seem to help.
It's been a roller coaster ride.
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