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Neil, you referred to remembering that the treatment is temporary? I've not been on Vidaza yet, but it's my understanding that treatment continues until it's no longer working. I don't think this patient is a transplant candidate. And I may be wrong here, but don't your counts vary while on Vidaza? For instance, maybe your ANC tanks in 10 days, but then recovers for a while before the next treatment. Couldn't you ease up on restrictions during the period of time it was up? Food for thought anyway!
Mags
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Margaret, age 68, dx MDS 5 q- 5/09- now RCMD; also MGUS. TP53 and TET2 mutations
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