Hi folks~
Just found out that I have been approved for Revlimid! Hooray! I hope to be one of the exceptions where it works without the 5q-....It would be so wonderful to be transfusion independent!!!!!!!
I've been on Danazol (male hormone) for a week--no noticable side effects yet...it is supposed to boost platelets.
Still running this crazy fever, and night sweats. It amazes me that the ONLY time I sweat is when I am asleep. For example, I can sit on the couch for 6 hours watching tv and not perspire a bit. Fall asleep, and I wake up soaking wet!
Last week my white count was .1...
no where to go but up!
I am on Bactrim 3xweek, and Valtrex daily--Exjade on hold for a month.
Needing red blood more often lately....
Feeling tired but I think it's from the fever--it's like driving with your emergency brake on!
The roller coaster continues! But I just celebrated my 2 year anniversay of being diagnosed with AML!
For the first year, I was convinced I was a week away from death.
Now, I feel that I live with a pesky disease, but my demise it not imminent!
That's the latest!
Hope everyone is having a good week!