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Update
Hi all
Well, I have been on Revlimid for several weeks now, and just got bumped up to taking 5 mg every day, instead of every other day. The expected platelet/WBC drop--went from 88k platelets to 36 today...steady decline over last few weeks. WBC @ .7 despite Neupogen 4xweek........hoping this levels off soon. Energy levels are really low....
Having some serious GI problems--wicked, cramping intestinal pains, so bad I couldn't leave the house yesterday. Wonder if it's from the Exjade, or just a combination of all of the meds I have been on and my flora is destroyed.
Will meet with GI Dr, but can't get in for 2 weeks......digestive tract is just a mess...trying to eat light, but no rhyme or reason as to what produces gas on any given day.
I have a couple of these strange flat, bright red oval sore looking things on my legs--about 1/4 x 1/2 in long...doesn't bleed or hurt--fades after a few days...any clue, anyone? (looks kinda like a cigarette burn!)
I'm in that "one day at a time" phase right now....any input you may have is welcome!
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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