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Hi Cheri, sorry to hear you are not well.
That stomach problem sounds very much like what happened to me when I was on Exjade. It turns out that not only did I have GI problems but I had pancreatitis as well. My doctor said he hadn't heard of this as a side effect from Exjade but I think the proof is, that when I stopped the Exjade my pancreatic enzymes returned to normal.
It seems wrong for you to have to wait 2 weeks to see the GI doctor. Can't your Haematologist contact them and ask for an urgent appointment? That's what my doctor did and I was seen the same day.
I hope you start feeling better soon.
Regards
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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