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Hi Carole - thanks for the encouraging words to my post. We have to remain positive and focussed on the prospect of a complete cure! Life as a professional patient is no fun.
Before I knew my brother was a match, I discussed the possibility of a haplo/chord transplant - this procedure uses stem cells from a half match - like a child or parent - along with chord stem cells. I was told the half matched cells served as a bridge as the chord cells take a little longer to graft. Doctor said this procedure can have a little more difficult/longer recovery but overall they were seeing results as good as matched donor transplant - but maybe with less graft versus host - is this the procedure they are discussing with you - or just using chord blood?
As you said, trust in your doctors and faith in your strength and determination are key.
You are in my thoughts and prayers too.
Best, Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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