Quote:
Originally Posted by Ryan Jay
So, what do you guys think? Am I overstepping on this one?  |
Not at all! I think the more people know about these conditions, the better. I had so many people who were SHOCKED to find out that you can have chemo without having cancer, and that conditions like ours which are so similar to blood cancers aren't catered for by a lot of the cancer charities and legislations. The more awareness that's out there, the better chance we have for others with bone marrow disorders to benefit from widening the scope of the help that's out there.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!
I've run 5 marathons now!! (PB 3:30!)