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Old Sat Nov 19, 2016, 12:26 PM
dfantle dfantle is offline
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Join Date: Jan 2012
Location: bellevue, wa
Posts: 150
When to stop phlebotomies?

Hi, wondering at what ferritin level most of you have stopped your phlebotomies for iron overload caused by transfusions?
My level is finally down to 700ng/ml. My provider is suggesting we stop when this level reaches 500. (I've been having the phlebotomies monthly for 3 years)

Thank you
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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