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Old Sun Nov 20, 2016, 02:59 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,240
Hopefully, John will be stopping with his next appointment. We would like to see FE at 200 but we found most docs are ok with it being in the 500 -700 range. His local hematologist wants it no higher than the high end of normal. He reached that goal about two years ago and then at his next annual appointment, it was up again so he wrote ordesr for every other month phlebotomies for one year. He just did his last one and we'll find out in Jan/Feb what his FE is. He's been dealing with iron overload since 2002. It's been a real challenge for him.

We are more comfortable with his FE being at least in the mid normal range. John's HBG has never fully recovered so we have to rely on the doc to issue orders otherwise the blood donor center won't take his blood.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of January 2017, FE is 233, HGB 11.7, WBC 5.1/ANC 4.0, Plts 146K.
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