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Old Thu Jan 24, 2013, 12:09 AM
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AA&MDSIF to Hold Six One-day Patient Conferences in 2013

The Aplastic Anemia & MDS International Foundation (AA&MDSIF) will hold six one-day conferences for AA, MDS, and PNH patients and their families in 2013, in six cities across the U.S.

Conference attendance will be free. Those who want to stay overnight can take advantage of discounted hotel rates. Plan to attend the patient conference closest to you.

Living with Aplastic Anemia, MDS or PNH - 2013 Conferences

Click links for conference threads.
  1. Phoenix, Arizona - Saturday April 6, 2013

  2. Houston, Texas - Saturday April 20, 2013

  3. Cleveland, Ohio - Saturday June 22, 2013

  4. San Francisco, California - Saturday July 20, 2013

  5. Boston, Massachusetts - Saturday, September 7, 2013

  6. Tampa, Florida - Saturday, November 9, 2013
Agenda

Each conference will include parallel (simultaneous) sessions on AA, MDS, and PNH, sessions to help you live with and cope with these diseases, and professionally-facilitated support sessions with your peers.

At each conference patients and family members will be able to
  • meet medical experts face-to-face
  • hear about the latest treatments and medical research
  • learn skills for managing life with a bone marrow failure disease
  • have your questions answered
  • learn how to be your own advocate for the best care
  • get to know other patients and family members like yourselves
  • attend professionally-facilitated support sessions
  • let children ages 6 to 16 attend a For Kids Only Workshop (locations to be determined)
Registration is open for all conferences. Click a link above for complete information and registration links.

To identify other attendees you can meet, post in the Marrowforums thread for the conference you plan to attend.
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