View Single Post
  #7  
Old Sun Feb 21, 2021, 11:06 PM
Hopeful Hopeful is offline
Member
 
Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Natalie,
I am sorry to read of your son's diagnosis. Everything I have read and heard agrees with Neil - once a diagnosis of SAA is confirmed, you should begin treatment ASAP. If the disease is immune mediated, the immune system will continue to attack/damage the cells and bone marrow until it is stopped.

Ideally treatment starts within a month of diagnosis. My diagnosis was delayed, so my treatment was 3-4 months after presentation. I only had a partial response but it has been durable.

Your son has youth on his side, which is a very good thing in the AA world. Just be sure that you are seeing an AA expert and that his disease is not genetic, as treatments will vary then. Please don't delay.

Wishing you both the best!
__________________
55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Reply With Quote