John just got his first shot this past Friday and so far, is doing well. Other than a sore arm for two days and a bit tired the first day. This April will be 19 years since he was diagnosed. He is not on any immunosuppressive medicines and his white count has remained stable in the normal range. His red cells and platelet remain below normal but in a very livable range. So he's in a partial stable remission and age is his only risk factor for getting a severe bout of COVID.
There is always a risk that the vaccine could effect his counts but I'm sure the virus could have more of an impact on them as well as other issues.
It would be helpful to understand what their concerns are regarding his low counts. For example: Are his platelets so low that he's at risk for bleeding? Is his white count so low that they think he wouldn't have a response? Or are they concerned that it will trigger a relapse? Or are they planning to start a new treatment for his falling counts? They need to be more specific than "just low counts"
You may want to take a look at this to see if it helps:
https://www.hematology.org/covid-19/...plastic-anemia
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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