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Hi Jody,
It sure seems like your son is responding to cyclosporine alone. Typically, cyclosporine isn't tapered until counts have stabilized for 3 months... not when they are still going up. The marrow needs time to recover so that it can fight the battles without help of the drug. So, there is a significant risk of relapse if the cyclosporine is doing most of the work, and it is stopped too early.
Cyclosporine is expensive. So, cost may be a factor in their 6 month decision. Perhaps they just plan on lowering his dosage rather than stopping cold turkey???
The lower the dosage of cyclosporine, the less side effects, in my experience.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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