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Old Sat Jul 28, 2012, 09:40 PM
Greg H Greg H is offline
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Join Date: Sep 2010
Location: North Carolina
Posts: 660
Sally,

I think the other great thing about your sharing Don's story is that it may encourage folks to have a positive attitude about participating in clinical trials.

With a rare disease like MDS, where there are relatively few options that have been FDA approved, a clinical trial can sometimes be the only want to get the drug or treatment that fits your particular type of MDS.

It doesn't always work, of course but it has certainly worked for you all -- and, by participating in a trial, you've helped countless MDS patients who come behind you.

Take care!

Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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