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Old Fri Jan 9, 2015, 02:40 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Quote:
Originally Posted by Carole L View Post
Hi Everyone,
Am a 58 yr old woman recently diagnosed with MDS-refractory cytopenia with multilineage dysplasia less than 2% blasts. IPSS-R 4 - intermediate risk. Still in shock, researching like crazy and emotionally on a roller coaster ride.

Have been offered Viadaza to start as first line, with BMT as follow up- no thanks. Such high risks involved in BMT -not sure I could commit.

Am curious to know if anyone has been to Angeles Hospital in Tijuana, Mexico or any other alternative health clinic. If so, what sort of results have folks had.

Thanks
Carole

Hi Carole,

If you are in the LA area, I would recommend Dr Paquette for a second opinion. Do you have any cytogenetic abnormalities?
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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