Transfusion frequency increased within a week post-treatment and has gotten steadily worse. I'm finding lots of post with low counts, but I'm not finding posts about needing transfusions every 2-3 days.
His platelets were 8000 Saturday and he got a pack of platelets Saturday night and another on Sunday. Monday he was at 40,000 and Tuesday he was back down to 20,000. They gave 3 packs on Tuesday afternoon because they needed him above 50,000 to do an endoscopy and he reached 97,000. He was still at 92,000 this morning.
After 4 units of blood Saturday and Sunday, his hemoglobin had dropped to 7.3 yesterday.
There is blood in his stool and they can't find the source.
I don't know if we should be really scared or if this is within "normal" range for MDS.
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husband, 70, diagnosed with treatment-related MDS in March 2012; in treatment with Vidaza; previous cancer of the nasopharynx
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