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Hi knocksonce,
I needed transfusions on 4 (2 units each time) out of the first 5 days of the very first cycle then another transfusion each week until the next cycle then on 3 out of the 5 days of the first week of the second cycle etc. Neuts dropped to 0.0
I was having transfusions (3 units) every two weeks before I started Vidaza.
The transfusion requirement very slowly improved but I only had 5 cycles due to other health issues, so I don't know if the numbers would have improved more or not.
All the best.
Regards
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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