Thread: Keeping Faith
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Old Mon Feb 11, 2013, 10:03 PM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
I am sorry you have been going through all this. It can be a scary ride. But it can also be full of hope. Everyone here is amazing, Knowledgeble and supportive
You said you are starting to see a rise in your plateletts. What about your other counts? From my understanding it may take 6 months to a year for counts to continue to climb after ATG.(I'm still looking into this though as my husband is most likely about to start ATG). Maybe someone can correct me if I'm wrong.
Anyway if your counts are starting to go up that's great! I think you said your about 4 months in?
We have been advised not to get platelets unless there are signs of bleeding or counts so low it's necessary. The reasons we were given included, they only last about 7 days and the more often you have plateletts infused the shorter time they help and your body develops antibodies against them faster. Point being get them only if you need them. With that said if you need them get them!
My advise, listen to your body. Look for signs of counts going down. Keep your Dr informed of any changes.
Keep praying courage, boldness, clarity, and peace.
Hope that helped
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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