Thread: Results
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  #11  
Old Fri Aug 12, 2016, 11:11 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Sarah,

It looks like the transfusion gave you a nice bump in your hemoglobin. Hopefully, it will still be high at your next appointment. The platelet fluctuations are normal.

Are you still walking? Do you have muscle wasting from the prednisone? My doctors' encouraged me to continue to exercise (in moderation) because I was so active before diagnosis. It helps maintain your sanity through this ordeal. Ask your doctor if this is okay for you.

I was able to regain a normal lifestyle. I am on medications for life, but that is my new normal

Good luck!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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