Thread: Family problem
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Old Wed Aug 29, 2012, 11:01 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi, I spoke to Mum at 7.30 this am and her livers ok, it's her kidney function that's bad.

At 11.30 I rang to see what ward she was admitted to. Switchboard said 3A and put me through. 3A said she was still in ED (11 and a half hours after getting there). ED said that she wasn't there and put me back to 3A. Well here it is at 12.50pm and guess what! They still don't know where she is and no one seems to be in the slightest inclined to try to find her.

I also asked if I could have the phone number of the bed she was going into and they DON'T have bedside phones. There's no way for her to ring us or for us to ring her. She's 80 and doesn't own and has never used a mobile phone so I don't know if it's worth buying one for her.

I'm catching a maxi taxi, in my manual wheelchair which i have trouble using, to the hospital to try to find her and I'm already in a foul mood.

Ughh.

Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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