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Old Mon Dec 3, 2018, 01:36 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Have you had a BMB yet? What was your cellularity? How is your HGB? A platelet count of 47 is not too terrible in the AA world, even after treatment. So, maybe the doctors are hoping the marrow can turn things around on its own during the next 2-3 months.

In the meantime, do all you can to help. Take a good look at any medications and supplements that you are taking. Even some teas have been implicated for AA. If you drink alcohol, stop, as it suppresses the marrow. Be cautious around sick people.

Everyone is different with this disease. I felt better upon returning from the hospital after IST then I did before I checked in, but it is all relative. I was still transfusion dependent for a while afterwards.

It is a long slow road to recovery. When you return to work will depend on your job and which cell lines are the slowest to recover.

Hopefully your marrow is able to turn things around! Best of luck!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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