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Old Sun Jan 5, 2020, 12:01 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 726
Hi Jane,

I am sorry that you are having to deal with this on top of the exhaustion of being a new mom!

Pregnancy is considered one of the triggers of aplastic anemia.The experts at NIH will discourage former aplastic anemia patients from getting pregnant because of this risk.

Sometimes the aplastic anemia will resolve on its own. A C-section was probably another big stress on your immune system, however, that may factor into your recovery. If your counts continue to trend down, and a BMB indicates severe aplastic anemia or you become transfusion dependent, then swift and decisive treatment is needed: either IST or a transplant. Those are the choices. Homeopathic measures will not cure immune-mediated aplastic anemia if that is what you have, it is worsening, and if it is not due to nutritional deficiencies.

Like Marlene, I'd strongly recommend getting a second opinion from an expert in aplastic anemia ASAP. If you don't want to travel, there are probably some great aplastic anemia specialists in the Seattle area, and if you decide to go the transplant route, Fred Hutch is one of the best. You need to take immediate action in seeking out that opinion! The experts will fit you in their schedules, as they know how critical it is to start treatment soon after diagnosis.

It is good that you are in great health otherwise. I know you are tired, even more so with a little one and being anemic, but shift your focus from what caused the aplastic anemia to how best to treat it and when that treatment should start. Once you are confident in your diagnosis and have a game plan in place, you will feel a greater sense of control(?) should you need to act on that plan.

I hope I am not scaring you. I am just trying to light a fire, like my hematologist did for me. Wishing you the best!
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53 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent

Last edited by Hopeful : Sun Jan 5, 2020 at 12:38 PM.
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