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Old Tue Aug 16, 2011, 08:42 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
John too had a problem with full phlebotomies. Monthly, 500 ml phlebotomies were too much for his bone marrow. Each month, it would take longer to get back up to his starting HGB to the point he had to stop. He now does every other month and only gets 250 ml removed. His HGB is around 12 and as long as it doesn't drop below 10, they'll remove blood from him.

So it's not unusual for those with BM disorder to take longer to restore red cells. You may have to find your threshold. Maybe it's 500 ml or less every other month.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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