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Old Tue Apr 1, 2014, 11:25 PM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Not sure if I'm answering correctly but .. My husband was positive CMV his donor was neg for CMV so they are watching him closely for flare ups. Shortly after transplant they were not happy w his (CMV levels?) so they switched his antiviral from valtrex to acyclovir. That knocked those levels back into place then they waited a couple more months before switching back to valtrex. All these antiviral/anti fungal /antibacterial meds affect the blood counts. He had some liver issues that looking back we think were low GVHD (they told us that back then but we/I refused to accept) he takes ursodiol for the liver now and that has helped tremendously. God bless. Words give life. I'll be praying!!
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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