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Old Sat Jul 28, 2018, 11:56 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Hi Purigading

It's scary when you're first diagnosed with MDS and I understand how you are feeling. I was 64 and in a job I loved. I'm now 71 and MDS is not the focus of my life any more because fortunately my condition since 2012 has been reasonably stable.

I still have Intragam for hypogammaglobulinaemia. It helps my immune system to cope with the compromised immunity caused by my low neutrophils and lymphocytes. Recently because I'm in Tasmania caring for my 11 year old grandson and it's mid winter, my haemotologist increased the dose of Intragam. It's given me a nice boost. In 2012 I decided I didn't want to have chemical treatment unless absolutely essential and so far that's been the best decision for me.

Keep posting - I hope you are blessed with many years of life to come.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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