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I have Pure Red Cell Aplasia. It only affects my red cells and Hgb. It is rare even on these boards. I don't know where you live, but a second opinion is a good choice, especially from a medical school. It took three BMB's for mine to be diagnosed, the third one was sent to the local medical school.
The good news on PRCA is that some cases can be cured because they have an underlying medical condition. Mine is autoimmune, but once I found an experienced hematologist who is familiar with the medications involved, it is fairly easy to manage.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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