Thank you Mario and 'Hopeful' for your replies. I had never heard of PNH so I had to do some research.
I am still a bit confused by my diagnosis. My bone marrow test in August showed normal cytogenics, which is good news, but I won't know the full implications until I see my consultant again in four weeks time.
I understand that an allogenic transplant carries a lot of risk, but I have been told it is my only option. I suppose I should be pleased that I am well enough to be considered for the procedure.
David
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David, Age 60, diagnosed with MDS August 2018. Low Hb and platelets, weekly transfusions. No genetic mutations. Developed into AML with FLT3 mutation while waiting for a SCT. Allogenic SCT - MUD in Feb 2019. Relapsed June 2019. Azacitidine, Venetoclax and DLI.
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