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Oral GVHD flareup
Well, almost made it one year post MUD SCT without a GVHD flare up, but had an oral flareup yesterday (my 1 year anniversary is Jan 29). Frustrated and hoping the blood work I have done tomorrow just before my 1 year BMB hip poke still shows no additional signs of GVHD. This came out of the blue. I'm still on 50mg of cyclosporine 2xday & have been at this level for 1 month.
I know I've been really lucky as I haven't had a flare up yet & only a tiny bit of oral GVHD between 3 & 6 months post, this time however, my mouth has quite a bit & it appeared so fast. I just restarted Oral Dexamethasone rinse & Beclometh Oil (a custom drug created at my clinics pharmacy for GVHD) & hoping my 1 year appts tomorrow & next week go smoothly.
If anyone has other tips for managing the oral GVHD, please share
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Dena
Age 54; DX Heavy Chain (AH) Amyloidosis 6/10; AutoSCT 3/11; Amyloidosis remission 6/11; DX SAA 7/11; Horse ATG 3/12; Mini MUD SCT 1/13; Recovered from SAA 5/13 & feeling great
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