Thread: MDS
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  #9  
Old Mon Oct 10, 2016, 12:43 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Quote:
Originally Posted by Ningwa View Post
Dear hopeful,
You have mentioned here to avoid supplements and teas. I have been taking vitamin d3 and b1 and lots of green teas and wheatgrass juice. Are any of those harmful to me? Plz let me know whatever experiences you ve got.
Thank you
Hi Ningwa,

Back when I was first being diagnosed, my specialist told me to avoid teas and supplements. He was trying to determine whether I was unknowing ingesting something that was contributing to my declining counts.

In the US, the supplement industry is unregulated and so you never know what you are taking! I recently heard a leading specialist caution against taking high amounts of Vitamin D indiscriminately, as Vitamin D is fat soluble and can be toxic in large quantities. I think the Vitamin B's are water soluble, so if you take too much of them your body will get rid of the excess.

I drink organic green tea now. I would stay away from anything that is non-organic, as contaminants can leach out when it is brewed.
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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