Thread: MDS
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  #13  
Old Tue Oct 11, 2016, 09:23 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
CherylC gives some good advice. I don't want to steal her credit

You are very young and it isn't clear yet that you even have MDS. The average person with MDS is 70+, so that will affect the life expectancy stats as well.

Focus on the positive and the things that you can control - like no smoking If ever there was a reason to quit, this would be it!

My doctors also told me to eat a varied diet that included meat. So, I will just throw that out there as well.

I hope your next CBC is headed in the right direction. Sometimes the marrow can heal on its own if the cause of the aplastic crisis was a drug or chemical exposure that has since been removed. Youth is in your favor!

Best of luck!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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