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Old Fri Feb 27, 2009, 12:05 PM
Will Wilkinson Will Wilkinson is offline
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Join Date: Dec 2008
Location: Buckinghamshire UK
Posts: 3
Thanks for the encouraging reply - it was much needed. My father was hoping to get the transfusion as he's been feeling more tired lately and finding it harder to get around - but as you say it's relative to his prior high fitness. I'm hoping to get to speak to his doctor at some point, but I live over 120 miles away and work full time so it's not easy. I'll try to get more diagnostic information next time he has a hospital visit, from what I've seen so far I suspect he's probably Intermediate-2 as he's also being considered for the AML 16 clinical trial if he can't get Vidaza which is his doctor's preferred treatment. We're fairly hopeful that funding will be available from the NHS for Vidaza from April but would like to have him start treatment as soon as possible. He's being treated at The Christie in Manchester by Dr Mike Dennis, the director of Haematology, so I'm happy that he's at good hospital with an appropriate specialist. It's just the NHS red tape that's making it hard for Dr Dennis to provide the treatment he feels would be most appropriate.
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