Hi Will,
As Neil wrote a good performance status is a prognostic good sign in MDS - your fathers Hb is almost OK and his platelets excellent
.
The problem is the low white blood cells including the low neutrophils. As you write Tavanic, Aciclovir and Sporanox help him to fight different kinds of infections. I think he should have Neupogen or a similar drug that increases his low white blood cells.
In Sweden we are waiting for Vidaza too. They have the drug in our “drug book” but it is still not available. We have been able to get Vidaza on licence during many years – is that not a possibility in UK
?
Kind regards
Birgitta-A
70 yo, dx MDS Interm-1 May 2006, transfusion dependent, Desferal for iron overload, Neupogen 2 injections/week for low white blood cells, asymptomatic