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Old Mon Nov 23, 2009, 12:47 AM
Jen B Jen B is offline
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Join Date: Jun 2009
Location: Glendale California
Posts: 42
Hey Nicole
Thanks for sending me the link to Evan's site.
Can you elaborate on the precautions you took?

We are in a private room. Staff come in with gloves and masks - someone to clean the room in the am, someone to log the machines we are using, the regular nursing staff (1 nurse and 1 nurse assistant), the food guys who drop off his meals...and me. Some days the Physical Therapist will come in, some days the psychologist or child life specialist will come in. No more than two in the room at a time (me +1), or (me+doctor+nurse).

Thanks Neal for clarifying on Lotsa Helping Hands. It has been a great resource for organizing our community in blood and platelet donations.
Our LHH site address is: http://www.lotsahelpinghands.com/c/609752/

I had the pleasure of meeting you at the UCLA AA meeting recently - thank you again for this site. It is a great resource for me to connect with others and learn from their experience.

Thanks
Jen
__________________
Mother of Ethan, diagnosed with SAA at age 3-1/2 Dec. 2008; Treated with ATG(h) Dec 2008 and ongoing Cyclosporine. MUD BMT 11/10/2009, 10/10 match

Last edited by Jen B : Mon Nov 23, 2009 at 12:52 AM. Reason: added link
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