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Old Tue Jun 26, 2007, 01:19 AM
Ruth Cuadra Ruth Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
Hi, Linda.

Welcome to Marrowforums. If you haven't already done so, you or your friend should contact the Aplastic Anemia & MDS International Foundation and ask for their information packets on aplastic anemia and PNH. You can also consult our Medical Resources page for links to various organizations such as the PNH Research and Support Foundation, PNHSource, the PNH Support Group, as well as treatment centers around the U.S.

The doctors you've mentioned are all well-known and very respected as is Dr. David Margolis at Children's Hospital of Wisconsin. The starting point for your friend may be to find a center locally--either in a major medical center or university-related hospital--with experience in treating aplastic anemia and/or PNH. Although there are similarities in the treatments for these diseases, it is important to be sure of the diagnosis so the full range of treatment options can be explored. Sometimes it is necessary to get second and third opinions about the diagnosis before you have a clear enough picture to decide on a course of action.

Where is your friend located? I'm sure others on the list will recommend other pediatric specialists if they can.

Regards,
Ruth Cuadra
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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