Thread: My journey!
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Old Mon May 22, 2017, 10:03 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi SMackie,

Welcome to the forum! I was diagnosed at age 42 and was living a very active, healthy lifestyle at the time as well. I went the IST route (ATG/cyclosporine) despite having sibling matches. Although I was confused about this decision by my doctors at the time, I am very grateful now, as it was the right one for me.

My recommendation to you is that once your diagnosis/treatment plan for SAA is confirmed, do not delay starting the treatment!

Also, recovering from this disease requires a lot of patience, but it can be done. Stay positive and focus on the important things in your life.

Best of luck on your journey!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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