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Old Sat Feb 10, 2018, 12:32 AM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
Michael,

I'm glad you found this forum, and I hope we can help you.

It was lucky that your father's low blood counts were discovered so the MDS could be identified, but unlucky that he's got MDS, especially with a complex karyotype.

His overall good health is an important factor in his favor.

If you've looked through these forums, you probably know about the AA&MDSIF and the free packet of educational materials that you can request from them, and about the patient resources available from the MDS Foundation. If you haven't already ordered them or read the online materials, I suggest that you do so, and have your family in Connecticut do so as well.

His local doctor seems to understand what MDS entails, but he'll get the most information at his Dana Farber appointment in March. I suggest that you help him prepare a list of questions to ask (see sample). You always have to wing it a bit at an initial appointment, because you don't know what the doctor will want to discuss with you, but bringing a list really helps you focus on what you hope to learn.

Good luck to you and your family.
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