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I feel your pain. You will feel better. Please keep us posted on your progress.
My son felt horrible after his ATG.
He was on a lot higher dose of Prednisone than you and I blame some of the misery on them. He was on Prednisone 100mg for 2 weeks then decreased the dose by 25mg every week. Full 2 months of steriods. Cushings symptoms by 6 weeks of steriod treatment.
Couldn't sleep very well, when he did he had horrible nightmares.
Terrible headaches. Very Very tired. Extremely moody.
Question
How much Prednisone were you taking right after the ATG and how are they tapering it?
I have read that Dr Neil Young at NIH is concerned that some facilities are prescribing excessively high doses of steroids post ATG. I am wondering what the correct dose of Prednisone post ATG is.
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